remarkable life
'I am valued here': the extraordinary film that recreates a disabled boy's rich digital life
The night after their son Mats died aged just 25, Trude and Robert Steen sat on the sofa in their living room in Oslo with their daughter Mia. "Everything was a blur," remembers Trude of that day 10 years ago. "Then Robert said, 'Maybe we should reach out to Mats' friends in World of Warcraft.'" Mats was born with Duchenne muscular dystrophy, a progressive condition that causes the muscles to weaken gradually. He was diagnosed aged four and started using a wheelchair at 10.
- Europe > Norway > Eastern Norway > Oslo (0.25)
- North America > United States > California (0.05)
- Media > Film (1.00)
- Leisure & Entertainment > Games > Computer Games (0.71)
The Remarkable Life of Ibelin review – moving tale of disabled gamer's digital double life
It's probably just an accident of scheduling, but this deeply affecting documentary is arriving just when there's a debate raging at the school gates about children's use of smartphones and social media. So while it's undoubtedly troubling how tech platforms set out to addict and exploit young minds, The Remarkable Life of Ibelin provides a fascinating counterargument about how online gaming at least can be a lifeline for some individuals who find themselves isolated in the real world, or IRL as the kids like to say. Born in 1989, Mats Steen started out like many other Norwegian children of his generation: energetic, sweet-natured, unusually pale. However, his parents Robert and Trude soon discovered that he had Duchenne muscular dystrophy, a genetic condition that eroded his ability to move and breathe and which would eventually kill him at the age of 25. By that point in 2014, Robert, Trude and Mats' sister Mia knew that Mats spent hours of his life online playing World of Warcraft using special equipment to accommodate his disability and had been publishing a blog about his life.
- Information Technology > Artificial Intelligence > Games > Computer Games (0.62)
- Information Technology > Communications (0.58)